Patients as Partners in Clinical Research Agenda 2026 Page 2

Stacey Bledsoe, RN, MSN, Head of Global Clinical Patient Engagement and Inclusion, Gilead Sciences, Inc

Wendy Erler, MBA, SVP, Patient Affairs, Sarepta Therapeutics

Gail Long, Director, Head of Marketing Patient Recruitment and Enablement, IQVIA

Cheryl Lubbert, Chief Executive Officer, Reverba Global

Josée Pelletier, MBA, Executive Director, Research & Drug Development, Global Patient Outreach, Global Purpose & Patient Experience, Corporate Affairs, Bristol Meyers Squibb

Emily Wotczak, MBA, Sr Business Process Improvement Program Manager, Medtronic

Showing Events in 1 Track from 09:40am to 10:20am

Morning Break and Networking

9:40AM - 10:20AM

Morning Break and Networking

Showing Events in 1 Track from 10:20am to 12:35pm

Morning Sessions Continued
Pacific Grand Ballroom

10:20AM - 11:05AM

Optimizing the Site Experience for Patients

Rosalie Filling, VP, Senior Global Head, R&D Operations, Endo

Leslie Michelle Dowling, Site Manager/Regulatory & Compliance Specialist, Sun Valley Research Center, Inc

Robin Marcus, Head of Global DCT Market Development, Marken

Kylie Sands, MBA, CCRP, Clinical Research Operations Manager, St Lawrence Health System

11:05AM - 11:50AM

Using AI to Improve Patient Interactions, Bridge Health Literacy Gaps and Support Clinical Trial Navigation

David Craig, MBA, CEO, GRYT Health

Beth Brooks, Head, Patient Insights and Behavioral Sciences (PIBS), Sanofi

Annick de Bruin, MBA, Chief Research and Insights Officer, The Center for Information and Study on Clinical Research Participation (CISCRP)

Patrick Gee Sr, PhD, JLC, Patient Advocate, Founder & Chief Executive Hope Dealer, iAdvocate, Inc

Karen Wood, Director, Patient Insights, Medidata, a Dassault Systèmes company

11:50AM - 12:35PM

The Annual PatientsasPartners VIEW

Co-Moderated by:

Mackenzie Abramson, MPH, Lived-Experience Expert, Patient Advocate

Giulia Ghibellini, PhD, Sr Dir, Patient Focused Medical Engagement Lead; Global Medical Affairs, Innovative Medicines R&D, Teva Pharmaceuticals

VIEW Guests:

Leslie Ives, Head of Patient Recruitment, Parexel

Elan Josielewski, Senior Director, Patient Centered Solutions & General Manager, IQVIA Quality Metric, IQVIA

Ashish Rishi, Founder, Unwritten Health

Participating Companies:

Showing Events in 1 Track from 12:40pm to 01:40pm

Lunch and Networking

12:40PM - 1:40PM

Lunch and Networking

Showing Events in 1 Track from 01:40pm to 02:40pm

Afternoon Interactive Sessions

1:40PM - 2:40PM

Choice of 2 Interactive Sessions

Showing Events in 2 Tracks from 01:45pm to 02:40pm

INTERACTIVE SESSION #1
Pacific Ballroom ABC

1:45PM - 2:40PM

“Mind the Gaps” in Patient Recruitment: Fixing Dead Ends, Misalignments, and Blind Spots to Drive Successful Outcomes

Session Facilitators:

Caroline Melendez Daigle, VP, Services, Carebox

Participants:

Jamie Brown, Senior Director, Patient Engagement: Access and Retention – Digital Strategy, Eli Lilly and Company

Catherine Higgins, PhD, SVP of Science Programs, Stand Up To Cancer

Leah Sorini, Director, Corporate Partnerships, Pulmonary Fibrosis Foundation (PFF)

Karen Whonder, Director, Global Site and Patient Partnership Lead for Immunology, AstraZeneca

INTERACTIVE SESSION #2
Pacific Ballroom FGH

1:45PM - 2:40PM

Patient Journey Friction Mapping: Designing Solutions that Improve Engagement Across Clinical Trials

Session Facilitators:

Mike Burton, SVP Value, Jumo Health

Mackenzie McKinney, Executive Director, Site Solutions and Patient Experience, Jumo Health

John Seaner, EVP of Innovation and GTM, Jumo Health

Showing Events in 1 Track from 02:45pm to 03:30pm

Afternoon Break and Networking

2:45PM - 3:30PM

Afternoon Break and Networking

Showing Events in 1 Track from 03:30pm to 05:30pm

Afternoon Track Choices

3:30PM - 5:30PM

Three Track Choices

Showing Events in 3 Tracks from 03:30pm to 05:15pm

TRACK 1: AI, Digital Tech & RWD
Pacific Ballroom ABC

Track Chair:

Amy Cohen, Founder & Principal Consultant, The Patient Room

3:30PM - 3:50PM

Scaling Patient Insights: Agile, Portfolio-Level Approaches in R&D

Diana Fisher, MS, MPH, CPH, Associate Director, Clinical Trial Design Capabilities, Eli Lilly & Company

Emily Goldsher-Diamond, Advisory Manager, ZS

Emily Wotczak, MBA, Sr Business Process Improvement Program Manager, Medtronic

3:50PM - 4:10PM

BioMarin: From Home to Trial - Prioritizing Digital Measures that Impact Patient Outcomes

Andrew Pearlmutter, Associate Director, Patient Centered Outcomes Science, BioMarin Pharmaceuticals, Inc.

4:10PM - 4:30PM

Omnichannel Management: Measuring Performance Against Plans for Successful Enrollment Outcomes

Kisha Bush, Director, Patient & Site Engagement, Boehringer Ingelheim

Michelle Everill, VP, Global Trial Optimization, Alnylam Pharmaceuticals

Sara Pierson, Sr. Director, Clinical Trial Ecosystem, Pfizer

Chris Venezia, CEO, ProofPilot

4:30PM - 4:50PM

Pfizer: Turning Patient Experience Data into Actionable Insights

Jillian Lusk, Sr Manager, Patient-Centered Outcomes Assessment, Pfizer

TRACK 2: Inclusive Research & Community Engagement
Pacific Ballroom DE

Track Chair:

Karen Peterson, Founder and Chief Patient Advocate, Karen's Club

3:30PM - 3:50PM

AstraZeneca: Data-Driven Strategies to Increase Underrepresented Patient Participation

Paris Johnson, Site Engagement Lead, Diversity; Site Management & Monitoring, R&D Late Delivery Oncology, AstraZeneca

3:50PM - 4:10PM

SVRC on Achieving Top-Three National Enrollment and 99% Retention in Underserved Communities

Judy Galindo, MAS, CCRC, Executive Director & Co-founder, Sun Valley Research Center, Inc

4:10PM - 4:30PM

Embedding Pediatric Voices in Clinical Research: Multi-Stakeholder Perspectives from Pfizer, Eli Lilly, and iCAN Research

Diana Fisher, MS, MPH, CPH, Associate Director, Clinical Trial Design Capabilities, Eli Lilly & Company

Sabina Schmidt Goldstein-Becerra, Executive Director, International Children's Advisory Network (iCan)

Gwyneth Mogg-Hall, MPH, Director, Clinical Trial Patient Engagement & Advocacy Lead (PEAL), Pfizer

4:30PM - 5:15PM

Designing Pediatric Trials for Participation: New Models for Engagement, Trust, and Retention

Madison Reider, Former Senior Manager, R&D Patient Partnerships, CSL Behring

Jenn Curry, Head, Patient Engagement Capabilities, Biogen

Ellyn Getz, MPH, Director, R&D Patient Partnerships, CSL Behring

Aaron J Horowitz, Founder & CEO, Empath Labs

Pamela Johnson, MPH, CCRC, Patient Advocate and Research Education & Quality Improvement Program Manager, Hartford HealthCare

TRACK 3: Collaborative Partnerships Driving Impact
Pacific Ballroom FGH

Track Chair:

Jennie Flanagan, Lived-Experience Expert & COO, Community Health Center of North Country

3:30PM - 3:50PM

Day One Bio: How Patient and Family Input Drives a Better Trial Experience

Kelli Wright, Director, Patient Advocacy, Day One Biopharmaceuticals

3:50PM - 4:10PM

How J&J is Driving Measurable Impact Through Patient-Advocate Collaborations

Jill Feldman, Co-founder, EGFR Resisters

Michelle Hull, Global Head, Patient Advocacy; Global Medical Affairs, Oncology, J&J Innovative Medicine

4:10PM - 4:30PM

Sanofi: Delivering on our Promise to Patient Communities: A Guide Transparent Reporting and Communications

Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi

Kersten Sharrock, Global Head, Integrated Patient Engagement, Corporate Public Affairs, Sanofi

4:30PM - 4:50PM

Opus Genetics: How a Small Biotech Used Patient Storytelling to Drive Evidence, Awareness, and Engagement in Ultra-Rare Disease