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Patients as Partners in Clinical Research

Date: Mar 24, 2026 - Mar 26, 2026

Location: Boston, MA

Day Two: Tuesday, March 18, 2025
Showing Events in 1 Track from 08:30am to 09:10am
Morning Remarks
8:30AM - 9:00AM
Registration
Graciously Hosted By:
9:00AM - 9:10AM
Co-Chairs’ Welcome & Opening Remarks
Co-Chairs:
Patrick Gee Sr, PhD, JLC, Patient Advocate, Founder & Chief Executive Hope Dealer, iAdvocate, Inc
Stacy Hurt, MHA, MBA, Chief Patient Officer, Parexel International Inc
Showing Events in 1 Track from 09:10am to 10:15am
Morning Sessions Grand Ballroom
9:10AM - 9:35AM
Zeitgeist: Catalyzing Change - The Business Imperative of Patient-Centric Drug Development
Zeitgeist:
Anthony Yanni, MD, SVP, Head of Patient Centricity, Astellas
9:35AM - 10:15AM
Panel: Sustaining Patient Engagement Initiatives Amid Pharma Reorganizations - Ensuring Continuity and Impact
Moderated By:
Jasmine Masullo, Senior Director, Research Services, The Center for Information and Study on Clinical Research Participation (CISCRP)
Panelists:
Angela Bilkhu, Sr Global Patient Partnership Director, Hematology Product Development: Medical Affairs, Roche
Justin Buck, Director, Global Patient Recruitment and Engagement Lead; Global Patient Insights & Solutions – Patient Experience, Alexion Pharmaceuticals
Rebecca Fidler, Director, Patient Centered Development, Late Development Oncology R&D, AstraZeneca
Jennifer Horonjeff, PhD, Founder & CEO, Savvy Cooperative
Showing Events in 1 Track from 10:15am to 10:55am
Morning Break and Networking
10:15AM - 10:55AM
Morning Break and Networking
Graciously Hosted By:
Showing Events in 1 Track from 10:55am to 12:40pm
Morning Sessions Continued Grand Ballroom
10:55AM - 11:15AM
Keynote: Pfizer’s Approach to Embedding the Patient Voice into Clinical Trials
Keynote Speaker:
Melinda Rottas, MBA, Head of Optimization, Analytics & Recruitment Solutions, Pfizer
11:15AM - 11:55AM
Partnering with Sites to Address Clinical Trial Challenges
Moderated By:
Rosalie Filling, VP, Senior Global Head, R&D Operations, Endo
Panelists:
Jyoti Angal, PhD, Director, Clinical Research, Avera Mckennan Hospital & University Health Center
Kelly J Brassil, PhD, RN, FAAN, Senior Director, Pack Health, A Quest Diagnostics Company
Shafaat Ali Khan, Clinical Research Lead (CRL)​ Director – Investigator Engagement, Eli Lilly & Co
Matthew Maxwell, DBA, Patient-Centered Chief Growth Officer, Centricity Research
11:55AM - 12:40PM
The Annual PatientsasPartners VIEW
VIEW Hosts:
Mackenzie Abramson, MPH, Patient Advocate and Sr. Manager, Research Program Communications, Global Genes
Ebony Dashiell-Aje, PhD, Executive Director, Patient Centered Outcomes Science (PCOS), BioMarin Pharmaceutical Inc
VIEW Guests:
Sue Hauck, Principal Patient Recruitment Lead, Parexel International, Inc
Sharib Khan, CEO & Co-founder, TrialX
Sarah McKeown-Cannon, SVP and Head of Clinical Research, Heartbeat Clinical Research
Participating Companies:
Showing Events in 1 Track from 12:40pm to 01:45pm
Lunch and Networking
12:40PM - 1:45PM
Lunch and Networking
Showing Events in 1 Track from 01:50pm to 04:45pm
Afternoon Track Choices
1:50PM - 4:45PM
Three Track Choices: AI, Digital & Mobile Technologies, DCTs / Measuring the Value of Patient Engagement / Site Level Diversity, End-to-End Patient Insights & Shaping Digital Endpoints
Showing Events in 3 Tracks from 01:55pm to 03:15pm
Track 1: AI, Digital & Mobile Tech, RWD Grand Ballroom
Track Chair:
Anthony K. Taylor, DHSc, MSPharm, Director, Clinical Study Patient Platform, AbbVie
1:55PM - 2:35PM
Real-World Data for More Inclusive, Patient-Centric Clinical Trials Panel
Moderated By:
Ebony Dashiell-Aje, PhD, Executive Director, Patient Centered Outcomes Science (PCOS), BioMarin Pharmaceutical Inc
Panelists:
Jyoti Angal, PhD, Director, Clinical Research, Avera Mckennan Hospital & University Health Center
Justin Hopkin, MD, Patient Advocate / Division Chief, Hospital Medicine / Chairman Emeritus, University of Rochester / National Niemann-Pick Disease Foundation
Melissa Penn, Director, Patient Engagement R&D, Bayer
Karen Wood, Patient Advocacy Program Manager, Medidata, a Dassault Systèmes company
2:35PM - 2:55PM
Moderna: Turning Patient Insights into Action - Leveraging AI to Enhance Patient Engagement
Speaker:
Rachael MacQueen, MBA, Sr. Manager, Patient Centricity, Patient & Site Experience (PASE), Moderna
2:55PM - 3:15PM
Incorporating Patient Input When It Counts - At the Beginning
Moderator:
Joseph Kim, MBA, Chief Strategy Officer, ProofPilot
Participants:
Mackenzie Abramson, MPH, Patient Advocate and Sr. Manager, Research Program Communications, Global Genes
Michelle Everill, VP, Global Trial Optimization, Alnylam Pharmaceuticals
Patrick Gee Sr, PhD, JLC, Patient Advocate, Founder & Chief Executive Hope Dealer, iAdvocate, Inc
Jessica Perry, Senior Director, Trial Optimization, Kymera Therapeutics
Track 2: Impact Measures / Measuring the Value of Patient Engagement Back Bay Ballroom AB
Track Chair:
Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim
1:55PM - 2:35PM
Proving the Value of Patient Engagement: Developing Metrics to Drive Impact and Obtain Stakeholder Buy-In Panel
Moderator:
Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim
Panelists:
Korinne Jew, Sr. Director, Enterprise Clinical Research & Medical Science, Medtronic
Heather Pin, Head, Patient Centric Operational Effectiveness | Patient Informed Development & Health Value Translation, Sanofi
2:35PM - 2:55PM
How Voice2Value Studies Prove the Worth of Patient Engagement Strategies
Speaker:
Emma Sutcliffe, Founder / Chief Patient Officer, International Society for Patient Engagement Professionals (ISPEP)
2:55PM - 3:15PM
Sanofi: Integrating Patient Preferences to Shape Clinical Development and Accelerate Outcomes
Speaker:
Catherine Coulouvrat, MD, Head, Health Value Translation, R&D, Sanofi
Track 3: Site Level Inclusivity, End-to-End Patient Insights & Shaping Digital Endpoints Back Bay Ballroom CD
Track Chair:
Ellyn Getz, MPH, Director, R&D Patient Partnerships, CSL Behring
1:55PM - 2:35PM
How Patient Organizations are Bridging Patient Inclusivity Gaps at the Site-Level
Moderator:
Jeanne Regnante, Founder / Strategic Health Equity Advisor, Patient 3i, LLC / Tigerlily Foundation
Panelists:
Tracy Battaglia, MD, MPH, Associate Cancer Center Director, Cancer Care Equity, Yale Cancer Center
Horace Clark, VP, General Manager, BlackDoctor.org
Elizabeth George, Head, Patient Diversity, Labcorp
Maimah Karmo, Founder/CEO, Tigerlily Foundation
2:35PM - 2:55PM
BioMarin: Engaging Patients and Caregivers to Shape Digital Endpoints in Pediatric Trials
Speakers:
Andrew Pearlmutter, Associate Director, Patient Centered Outcomes Science (PCOS), BioMarin Pharmaceuticals Inc
2:55PM - 3:15PM
Scaling Global Patient Insights: Practical Approaches for Drug Development
Moderator:
Laura Engerman, Principal and Lead of Patient & Site Engagement, ZS
Participants:
Jade Dennis, Executive Director, Patient Engagement, CoDesign, Eli Lilly and Company
Angi Gillen, MS, Senior Director, Head of Patient Experience, Global Development | Clinical Operations, Gilead Sciences
Showing Events in 1 Track from 03:20pm to 04:00pm
Afternoon Break and Networking
3:20PM - 4:00PM
Afternoon Break and Networking
Showing Events in 3 Tracks from 04:00pm to 04:40pm
Track 1: AI, Digital & Mobile Tech, RWD Grand Ballroom
Track Chair:
Anthony K. Taylor, DHSc, MSPharm, Director, Clinical Study Patient Platform, AbbVie
4:00PM - 4:20PM
Merck: Advancing Equity in Clinical Trials through Digital Accessibility and Inclusive Design
Speakers:
Stephen Framil, DMA, Corporate Global Head of Accessibility, Merck
4:20PM - 4:40PM
Boston Scientific: Leveraging Digital Tools and Technologies to Enhance Patient Engagement in Clinical Trials and Product Development
Speaker:
Dan Stephens, PhD, Global Advocacy - Real World Evidence, Patient Science & Early Feasibility, Boston Scientific
Track 2: Impact Measures / Measuring the Value of Patient Engagement Back Bay Ballroom AB
Track Chair:
Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim
4:00PM - 4:20PM
AstraZeneca: From Framework to Patient: Improving Access to Clinical Trials
Moderated By:
Swathi Ramesh, Director, Patient-Centered Development, Respiratory and Immunology, BioPharmaceuticals R&D, AstraZeneca
Participants:
Rebecca Fidler, Director, Patient Centered Development, Late Development Oncology R&D, AstraZeneca
Paris Johnson, Site Engagement Lead, Diversity; Site Management & Monitoring, R&D Late Delivery Oncology, AstraZeneca
Molly Kerrigan, Manager, Patient Safety Data & Analytics, AstraZeneca
4:20PM - 4:40PM
From Patient Insights to Impact: Overcoming Barriers to Innovation in Pediatric Clinical Trials
Speakers:
Cheryl Bernstein, RN, BSN, CCRC, Director, Bernstein Clinical Research Center
Ellyn Getz, MPH, Director, R&D Patient Partnerships, CSL Behring
Aaron J Horowitz, Founder & CEO, Empath Labs
Track 3: Site Level Inclusivity, End-to-End Patient Insights & Shaping Digital Endpoints Back Bay Ballroom CD
4:00PM - 4:40PM
Pfizer: A Collaborative Approach to Integrating Patient Insights from Early Development to Late-Stage Clinical Trials
Moderator:
Michael Zincone, Sr Director, Patient Advocacy, Pfizer
Participants:
Brett Hauber, PhD, Senior Director of Patient Preference Elicitation in the Chief Medical Office, Pfizer
Ann-Marie La Ronde-Richard, PhD, Director, Patient Engagement; Translational Clinical Sciences, Pfizer R&D
Abigail Newell, PhD, Director, Research, Cancer Support Community
Showing Events in 1 Track from 04:45pm to 04:45pm
End of Day Two
4:45PM - 4:45PM
End of Day Two
Showing Events in 1 Track from 08:30am to 09:10am
Morning Remarks
8:30AM - 9:00AM
Registration
Graciously Hosted By:
9:00AM - 9:10AM
Co-Chairs’ Welcome & Opening Remarks
Co-Chairs:
Patrick Gee Sr, PhD, JLC, Patient Advocate, Founder & Chief Executive Hope Dealer, iAdvocate, Inc
Stacy Hurt, MHA, MBA, Chief Patient Officer, Parexel International Inc
Showing Events in 1 Track from 09:10am to 10:15am
Morning Sessions
Grand Ballroom
9:10AM - 9:35AM
Zeitgeist: Catalyzing Change - The Business Imperative of Patient-Centric Drug Development
Zeitgeist:
Anthony Yanni, MD, SVP, Head of Patient Centricity, Astellas
9:35AM - 10:15AM
Panel: Sustaining Patient Engagement Initiatives Amid Pharma Reorganizations - Ensuring Continuity and Impact
Moderated By:
Jasmine Masullo, Senior Director, Research Services, The Center for Information and Study on Clinical Research Participation (CISCRP)
Panelists:
Angela Bilkhu, Sr Global Patient Partnership Director, Hematology Product Development: Medical Affairs, Roche
Justin Buck, Director, Global Patient Recruitment and Engagement Lead; Global Patient Insights & Solutions – Patient Experience, Alexion Pharmaceuticals
Rebecca Fidler, Director, Patient Centered Development, Late Development Oncology R&D, AstraZeneca
Jennifer Horonjeff, PhD, Founder & CEO, Savvy Cooperative
Showing Events in 1 Track from 10:15am to 10:55am
Morning Break and Networking
10:15AM - 10:55AM
Morning Break and Networking
Graciously Hosted By:
Showing Events in 1 Track from 10:55am to 12:40pm
Morning Sessions Continued
Grand Ballroom
10:55AM - 11:15AM
Keynote: Pfizer’s Approach to Embedding the Patient Voice into Clinical Trials
Keynote Speaker:
Melinda Rottas, MBA, Head of Optimization, Analytics & Recruitment Solutions, Pfizer
11:15AM - 11:55AM
Partnering with Sites to Address Clinical Trial Challenges
Moderated By:
Rosalie Filling, VP, Senior Global Head, R&D Operations, Endo
Panelists:
Jyoti Angal, PhD, Director, Clinical Research, Avera Mckennan Hospital & University Health Center
Kelly J Brassil, PhD, RN, FAAN, Senior Director, Pack Health, A Quest Diagnostics Company
Shafaat Ali Khan, Clinical Research Lead (CRL)​ Director – Investigator Engagement, Eli Lilly & Co
Matthew Maxwell, DBA, Patient-Centered Chief Growth Officer, Centricity Research
11:55AM - 12:40PM
The Annual PatientsasPartners VIEW
VIEW Hosts:
Mackenzie Abramson, MPH, Patient Advocate and Sr. Manager, Research Program Communications, Global Genes
Ebony Dashiell-Aje, PhD, Executive Director, Patient Centered Outcomes Science (PCOS), BioMarin Pharmaceutical Inc
VIEW Guests:
Sue Hauck, Principal Patient Recruitment Lead, Parexel International, Inc
Sharib Khan, CEO & Co-founder, TrialX
Sarah McKeown-Cannon, SVP and Head of Clinical Research, Heartbeat Clinical Research
Participating Companies:
Showing Events in 1 Track from 12:40pm to 01:45pm
Lunch and Networking
12:40PM - 1:45PM
Lunch and Networking
Showing Events in 1 Track from 01:50pm to 04:45pm
Afternoon Track Choices
1:50PM - 4:45PM
Three Track Choices: AI, Digital & Mobile Technologies, DCTs / Measuring the Value of Patient Engagement / Site Level Diversity, End-to-End Patient Insights & Shaping Digital Endpoints
Showing Events in 3 Tracks from 01:55pm to 03:15pm
Track 1: AI, Digital & Mobile Tech, RWD
Grand Ballroom
Track Chair:
Anthony K. Taylor, DHSc, MSPharm, Director, Clinical Study Patient Platform, AbbVie
1:55PM - 2:35PM
Real-World Data for More Inclusive, Patient-Centric Clinical Trials Panel
Moderated By:
Ebony Dashiell-Aje, PhD, Executive Director, Patient Centered Outcomes Science (PCOS), BioMarin Pharmaceutical Inc
Panelists:
Jyoti Angal, PhD, Director, Clinical Research, Avera Mckennan Hospital & University Health Center
Justin Hopkin, MD, Patient Advocate / Division Chief, Hospital Medicine / Chairman Emeritus, University of Rochester / National Niemann-Pick Disease Foundation
Melissa Penn, Director, Patient Engagement R&D, Bayer
Karen Wood, Patient Advocacy Program Manager, Medidata, a Dassault Systèmes company
2:35PM - 2:55PM
Moderna: Turning Patient Insights into Action - Leveraging AI to Enhance Patient Engagement
Speaker:
Rachael MacQueen, MBA, Sr. Manager, Patient Centricity, Patient & Site Experience (PASE), Moderna
2:55PM - 3:15PM
Incorporating Patient Input When It Counts - At the Beginning
Moderator:
Joseph Kim, MBA, Chief Strategy Officer, ProofPilot
Participants:
Mackenzie Abramson, MPH, Patient Advocate and Sr. Manager, Research Program Communications, Global Genes
Michelle Everill, VP, Global Trial Optimization, Alnylam Pharmaceuticals
Patrick Gee Sr, PhD, JLC, Patient Advocate, Founder & Chief Executive Hope Dealer, iAdvocate, Inc
Jessica Perry, Senior Director, Trial Optimization, Kymera Therapeutics
Track 2: Impact Measures / Measuring the Value of Patient Engagement
Back Bay Ballroom AB
Track Chair:
Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim
1:55PM - 2:35PM
Proving the Value of Patient Engagement: Developing Metrics to Drive Impact and Obtain Stakeholder Buy-In Panel
Moderator:
Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim
Panelists:
Korinne Jew, Sr. Director, Enterprise Clinical Research & Medical Science, Medtronic
Heather Pin, Head, Patient Centric Operational Effectiveness | Patient Informed Development & Health Value Translation, Sanofi
2:35PM - 2:55PM
How Voice2Value Studies Prove the Worth of Patient Engagement Strategies
Speaker:
Emma Sutcliffe, Founder / Chief Patient Officer, International Society for Patient Engagement Professionals (ISPEP)
2:55PM - 3:15PM
Sanofi: Integrating Patient Preferences to Shape Clinical Development and Accelerate Outcomes
Speaker:
Catherine Coulouvrat, MD, Head, Health Value Translation, R&D, Sanofi
Track 3: Site Level Inclusivity, End-to-End Patient Insights & Shaping Digital Endpoints
Back Bay Ballroom CD
Track Chair:
Ellyn Getz, MPH, Director, R&D Patient Partnerships, CSL Behring
1:55PM - 2:35PM
How Patient Organizations are Bridging Patient Inclusivity Gaps at the Site-Level
Moderator:
Jeanne Regnante, Founder / Strategic Health Equity Advisor, Patient 3i, LLC / Tigerlily Foundation
Panelists:
Tracy Battaglia, MD, MPH, Associate Cancer Center Director, Cancer Care Equity, Yale Cancer Center
Horace Clark, VP, General Manager, BlackDoctor.org
Elizabeth George, Head, Patient Diversity, Labcorp
Maimah Karmo, Founder/CEO, Tigerlily Foundation
2:35PM - 2:55PM
BioMarin: Engaging Patients and Caregivers to Shape Digital Endpoints in Pediatric Trials
Speakers:
Andrew Pearlmutter, Associate Director, Patient Centered Outcomes Science (PCOS), BioMarin Pharmaceuticals Inc
2:55PM - 3:15PM
Scaling Global Patient Insights: Practical Approaches for Drug Development
Moderator:
Laura Engerman, Principal and Lead of Patient & Site Engagement, ZS
Participants:
Jade Dennis, Executive Director, Patient Engagement, CoDesign, Eli Lilly and Company
Angi Gillen, MS, Senior Director, Head of Patient Experience, Global Development | Clinical Operations, Gilead Sciences
Showing Events in 1 Track from 03:20pm to 04:00pm
Afternoon Break and Networking
3:20PM - 4:00PM
Afternoon Break and Networking
Showing Events in 3 Tracks from 04:00pm to 04:40pm
Track 1: AI, Digital & Mobile Tech, RWD
Grand Ballroom
Track Chair:
Anthony K. Taylor, DHSc, MSPharm, Director, Clinical Study Patient Platform, AbbVie
4:00PM - 4:20PM
Merck: Advancing Equity in Clinical Trials through Digital Accessibility and Inclusive Design
Speakers:
Stephen Framil, DMA, Corporate Global Head of Accessibility, Merck
4:20PM - 4:40PM
Boston Scientific: Leveraging Digital Tools and Technologies to Enhance Patient Engagement in Clinical Trials and Product Development
Speaker:
Dan Stephens, PhD, Global Advocacy - Real World Evidence, Patient Science & Early Feasibility, Boston Scientific
Track 2: Impact Measures / Measuring the Value of Patient Engagement
Back Bay Ballroom AB
Track Chair:
Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim
4:00PM - 4:20PM
AstraZeneca: From Framework to Patient: Improving Access to Clinical Trials
Moderated By:
Swathi Ramesh, Director, Patient-Centered Development, Respiratory and Immunology, BioPharmaceuticals R&D, AstraZeneca
Participants:
Rebecca Fidler, Director, Patient Centered Development, Late Development Oncology R&D, AstraZeneca
Paris Johnson, Site Engagement Lead, Diversity; Site Management & Monitoring, R&D Late Delivery Oncology, AstraZeneca
Molly Kerrigan, Manager, Patient Safety Data & Analytics, AstraZeneca
4:20PM - 4:40PM
From Patient Insights to Impact: Overcoming Barriers to Innovation in Pediatric Clinical Trials
Speakers:
Cheryl Bernstein, RN, BSN, CCRC, Director, Bernstein Clinical Research Center
Ellyn Getz, MPH, Director, R&D Patient Partnerships, CSL Behring
Aaron J Horowitz, Founder & CEO, Empath Labs
Track 3: Site Level Inclusivity, End-to-End Patient Insights & Shaping Digital Endpoints
Back Bay Ballroom CD
4:00PM - 4:40PM
Pfizer: A Collaborative Approach to Integrating Patient Insights from Early Development to Late-Stage Clinical Trials
Moderator:
Michael Zincone, Sr Director, Patient Advocacy, Pfizer
Participants:
Brett Hauber, PhD, Senior Director of Patient Preference Elicitation in the Chief Medical Office, Pfizer
Ann-Marie La Ronde-Richard, PhD, Director, Patient Engagement; Translational Clinical Sciences, Pfizer R&D
Abigail Newell, PhD, Director, Research, Cancer Support Community
Showing Events in 1 Track from 04:45pm to 04:45pm
End of Day Two
4:45PM - 4:45PM
End of Day Two

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