Patients as Partners in Clinical Research Agenda 2026 Page 1

Wendy Erler, MBA, SVP, Patient Affairs, Sarepta Therapeutics

9:05AM - 9:30AM

Industry Keynote: A Leadership Blueprint for Embedding Patient Insights into Organizational DNA

Keynote Speaker:

Lisa Petermann, Chief Patient Experience Officer, Roche Canada

Showing Events in 1 Track from 09:30am to 10:20am

Ask the Patients

9:30AM - 9:40AM

Fireside Chat: Bridging Perspectives - A Caregiver’s Journey and Patient-Centered Clinical Research

Fireside Guest:

Muffy Walker, Author of "Memory Weavers" & Co-Founder, International Bipolar Foundation

Adrelia Allen, PharmD, Executive Director, Clinical Trial Patient Diversity, Global Clinical Trial Operations, Merck Research Laboratories

9:40AM - 10:20AM

Patient and Caregiver Perspectives: Insights for Optimizing Clinical Trials

Gwyneth Mogg-Hall, MPH, Director, Clinical Trial Patient Engagement & Advocacy Lead (PEAL), Pfizer

Panelists:

Donna Dinkin, DrPH, Patient, Advocate

Muffy Walker, Author of "Memory Weavers" & Co-Founder, International Bipolar Foundation

Sarah Woods, Lived-Experience Expert & Founder, Serenely Guided Foundation

Showing Events in 1 Track from 10:20am to 11:00am

Grand Opening, Breaks and Networking

10:20AM - 11:00AM

Grand Opening of the Patients as Partners Exhibits, Networking and Breakfast

Showing Events in 1 Track from 11:25am to 12:45pm

Morning Sessions

11:25AM - 12:10PM

INTERACTIVE SESSION: Co-Creating a Patient-Centered Trial Toolkit to Enhance Experience and Optimize Trial Design

12:10PM - 12:15PM

5-Minute Yoga Break

Graciously Hosted By:

12:15PM - 12:45PM

Reducing Patient Burden Technologies: A Quickfire Pop-Up Session

Jenn Curry, Head, Patient Engagement Capabilities, Biogen

Participating Companies to Date::

Showing Events in 1 Track from 12:45pm to 01:45pm

Lunch and Optional Roundtable Discussions

12:45PM - 1:45PM

Luncheon and Optional Roundtables

Showing 3 of 5 Tracks

from 01:05pm to 01:45pm

Roundtable #1

Leveraging Patient Experience Data to Drive Meaningful Impact: Challenges and Solutions

Jillian Lusk, Sr Manager, Patient-Centered Outcomes Assessment, Pfizer

Roundtable #2

From Insight to Impact: Scaling Patient Engagement Through Digital Transformation

Nidhi Saxena, Global Patient Engagement Strategy Director, Innovative Health Engagement & Advocacy Global Development, J&J Innovative Medicine

Roundtable #3

Building Strategic Pharma-Advocacy Partnerships: Practical Tips for Driving Impact

Christa Kerkorian, VP, Patient Advocacy, Day One Biopharmaceuticals

Roundtable #4

Strategies for Overcoming Internal Pushback on Patient Engagement

Terri Robertson, Patient Engagement Program Manager | CRMS, Medtronic

Emily Wotczak, MBA, Sr Business Process Improvement Program Manager, Medtronic

Roundtable #5

Practical Strategies and Real-World Models on Embedding Patient Insights in Research

Paris Barnes, MS, Senior Training Specialist, The PATIENTS Program, University of Maryland School of Pharmacy

Barry Nelson, Patient Advocate, Lived-Experienced Expert

Showing Events in 1 Track from 01:45pm to 03:10pm

Afternoon Track Choices

1:45PM - 3:10PM

Pharma, Biotech and Advocacy Case Studies on Patient Engagement Initiatives and Demonstrating Impact

Participating Companies:

Showing Events in 3 Tracks from 01:45pm to 03:05pm

TRACK A: Early Patient Engagement

Track Chair:

Anthony K. Taylor, DHSc, MSPharm, Director, Clinical Patient and Site Insights, AbbVie

1:45PM - 2:05PM

Alexion’s Early Patient Engagement Approach that Boosted Trial Feasibility and Efficiency

Janella Beltran, Patient Recruitment Lead, Global Patient Experience, Alexion, AstraZeneca Rare Disease

2:05PM - 2:25PM

How a Patient-Led Biotech Operationalizes Patient Engagement to Enable Early-Stage Research & Trials in an Underserved Disease

Kurt Harrington, MBA, Patient & Founder/CEO, Ventoux Biosciences

2:25PM - 2:45PM

Pharma Case Study

TRACK B: Operationalizing & Scaling PE

Track Chair:

Madison Reider, Senior Manager, R&D Patient Partnerships, CSL Behring

1:45PM - 2:05PM

How Boehringer Ingelheim Turned Patient Input into Measurable Trial Success: Faster Enrollment, Higher Retention, Better Experience

Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim

2:05PM - 2:25PM

BMS: Incorporating Early Patient Insights for Measurable Impact

Amy Fesmire-Baus, Associate Director, Patient Engagement and Recruitment - ICN Pillar Lead, BMS

Josée Pelletier, MBA, Executive Director, Research & Drug Development, Global Patient Outreach, Global Purpose & Patient Experience, Corporate Affairs, BMS

2:25PM - 2:45PM

Roche: Embedding Diverse Patient Insights in the End-to-end Development of Medicines

Ruma Bhagat, MD, MPH, Executive Director, Head of Strategy Population Science Team, Genentech, a member of the Roche Group

Ashley Iyer, Sr Director, Global Patient Partnership, Ophthalmology & Inclusive Health Catalyst, Roche

2:45PM - 3:05PM

How Merck is Operationalizing Health Literacy Across Clinical Research

Maureen Kashuba, Director, Health Literacy Projects; Medical Writing and Disclosure (MW&D), Merck Research Laboratories

Laurie Myers, Senior Director, Health Literacy Strategy and Innovation, Merck Research Laboratories

TRACK C: Metrics, ROE & Data-Driven Impact

1:45PM - 2:05PM

J&J on Co-Designing Trials for Faster Activation, Fewer Amendments, and Higher Retention

Gonzalo Linares, Global Head of Patient Advocacy, R&D, J&J Innovative Medicine

2:05PM - 2:25PM

Sanofi & Boehringer Ingelheim: Transforming Patient Engagement Data into Value Across the Drug Development Lifecycle

Vanessa Boulanger, Director, Patient Engagement, Boehringer Ingelheim

Heather Pin, Head, Patient Centric Operational Effectiveness | Patient Informed Development & Health Value Translation, Sanofi

2:25PM - 2:45PM

Pharma Case Study

Showing Events in 1 Track from 03:10pm to 03:50pm

Afternoon Break and Networking

3:10PM - 3:50PM

Afternoon Break and Networking

Showing Events in 1 Track from 03:50pm to 04:45pm

Innovative Solutions and Technologies

3:50PM - 4:45PM

Three track Choices: Innovative Solutions and Technologies that Enhance Patient-Enabled Trials and Services

Participating Companies to Date:

Showing Events in 1 Track from 05:00pm to 05:45pm

Afternoon General Session

5:00PM - 5:45PM

Panel: The State of Inclusive Research and Community Engagement to Better Serve All Patients