Meet 1:1 with Patients at the AskthePatients Center during
Patients as Partners in Clinical Research
We’re thrilled to continue the AskthePatients onsite program at the 13th annual Patients as Partners in Clinical Research Summit.
AskthePatients offers a unique opportunity for attendees to engage in 1:1 discussions with patients or caregivers who have actively participated in clinical trials. On-site, you can sign up to schedule a 15-minute, one-on-one meeting with the participating patient advocates. Their expertise spans from managing or caregiving for someone with a chronic disease, rare condition, or cancer to experience in using mobile/digital technology in trials, and more.
All meetings will take place at the AskthePatients Center located in the Exhibit Hall. To sign up, visit the AskthePatients table located next to Registration.
Introducing the Participating Patient Advocates
Donna Dinkin
About Donna Dinkin:
I champion and connect people living with scleroderma and pulmonary fibrosis—leading support, raising awareness, and advising research to help our community breathe easier.
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Sabina Kineen
About Sabina Kineen:
A Fabry Disease patient and caregiver, passionately advocating for clinical trial accessibility, health equity, and mental health awareness, open to sharing insights from 12 years of trial participation.
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Barry Nelson
About Barry Nelson:
I was diagnosed with advanced non small cell lung cancer in March 2012 and today, I continue to strive and live my best life!
Patrick O Gee, Sr
About Patrick O Gee, Sr:
I am the Voice of the Voiceless and the Face of the Faceless in the fight against kidney disease.
Mackenzie Abramson
About Mackenzie Abramson:
As a multi-rare disease patient, navigating the uphill battle of obtaining medications and treatments that address my issues, I passionately advocate for increased access to clinical trials, drug repurposing, and mental health care to ensure that patients losing hope are not left behind.
Sarah Woods
About Sarah Woods:
Living with and advocating for HHT, a rare blood vessel disorder that affects blood flow and organ function.
Robert Wiseman, Jr
About Robert Wiseman, Jr:
Living with hemophilia and complex chronic illness, I advocate to elevate patient voices and co-design healthcare, research, and community systems rooted in trust and lived/living experience.
Jennie Flanagan
About Jennie Flanagan:
I’m a two-time breast cancer survivor managing chronic disease, a kidney transplant recipient and a brain aneurysm rupture survivor dedicated to improving patient outcomes, safety, and patient advocacy across healthcare and research.
Misha Mehta
About Misha Mehta:
After losing my son Neev to DIPG, I became deeply engaged in advocacy focused on improving how pediatric brain cancers are studied, funded, and treated. Grounded in lived experience, I work alongside researchers, policymakers, and families to advance more equitable access to innovative therapies and to help ensure children are not left behind as progress moves forward.