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Patients as Partners in Clinical Research

Date: Mar 17, 2025 - Mar 19, 2025

Location: Philadelphia, PA

Meet 1:1 with Patients at the AskthePatients Center during
​​​​​​​Patients as Partners in Clinical Research

We’re thrilled to continue the AskthePatients onsite program at the 11th annual Patients as Partners in Clinical Research Summit. 

AskthePatients offers a unique opportunity for attendees to engage in 1:1 discussions with patients or caregivers who have actively participated in clinical trials. On-site, you can sign up to schedule a 15-minute, one-on-one meeting with the participating patient advocates. Their expertise spans from managing or caregiving for someone with a chronic disease, rare condition, or cancer to experience in using mobile/digital technology in trials, and more.
All meetings will take place at the AskthePatients Center located at the rear of the Exhibit Hall. To sign up, visit the AskthePatients table located next to Registration.

 Introducing the Participating Patient Advocates

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Mackenzie Abramson

About Mackenzie Abramson:
​​​​​​​As a multi-rare disease patient, navigating the uphill battle of obtaining medications and treatments that address my issues, I passionately advocate for increased access to clinical trials, drug repurposing, and mental health care to ensure that patients losing hope are not left behind.

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Julie Breneiser

About Julie Breneiser:
​​​​​​​My adult "children" and I have Gorlin syndrome, a rare genetic illness that can affect every organ system, and one of the many manifestations that I have had is over 1,000 basal cell carcinomas thus far.

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Jamie Goldfarb

About Jamie Goldfarb:
I am a stage IV melanoma survivor because a clinical trial saved my life and now it is my passion to spread information about clinical trials as far and as wide as possible.

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Sabina Kineen

About Sabina Kineen:
A Fabry Disease patient and caregiver, passionately advocating for clinical trial accessibility, health equity, and mental health awareness, open to sharing insights from 12 years of trial participation.

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​​​​​​​​​​​​​​Yvonne McLean Florence

About ​​​​​​​​​​​​​​Yvonne McLean Florence:
​​​​​​​I am a breast cancer survivor and advocate elevating the voice of the patients who are impacted by this health condition.

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Irisaida Mendez

About Irisaida Mendez:
It’s been over four years since I was told my time left was limited. I had stage IV lung cancer, but research saved my life. I advocate for the importance of quality healthcare, accessible and affordable for all. 

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Ray Merrell

About Ray Merrell:
I am a sleep disorders patient representative living with OSA & RBD

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Barry Nelson

About Barry Nelson:
​​​​​​​I was diagnosed with advanced non small cell lung cancer in March 2012 and today, I continue to strive and live my best life!

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Patrick O Gee, Sr

About Patrick O Gee, Sr:
​​​​​​​I am the Voice of the Voiceless and the Face of the Faceless in the fight against kidney disease.

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Karen Peterson

About Karen Peterson:
A Stage IV Triple Negative Breast Cancer Survivor advocating to empower patients of color with the knowledge and trust to pursue clinical trials that can save or extend their lives.

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Desiree A.H. Walker 

About Desiree A.H. Walker:
​​​​​​​Since my breast cancer diagnoses in August 2001 and November of 2009, I aspire to be the voice of the voiceless and reframe the narrative for cancer survivors/thrivers.

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Robert Weker

About Robert Weker:
​​​​​​​As a three-time cancer survivor and former pharmaceutical executive, I share my experience and insights, advocating that the patient voice is consistently heard in pharmaceutical development and decision-making, enabling patients to make informed decisions at all points of their journey.

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